About Shafer Daves

 

 

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Shafer Bray Daves, son of Kevin & Jada Daves, was born October 15, 2009 with an extremely rare medical condition of which there have been only 200 diagnosed cases in the world. The syndrome is caused by a genetic mutation that includes chronic kidney disease leading to failure by age 3, kidney cancer (known as Wilms’ Tumor) in many cases, and other difficulties. Shafer's kidney function declined rapidly due to End Stage Renal Disease (ESRD) in October 2010 resulting in a double nephrectomy (full kidney removal surgery). To bridge to transplant, Shafer was on peritoneal dialysis eleven hours a day to sustain his life, and received his nutrition primarily through a feeding tube. Shafer's medical team approved his mother to be the living donor for her son, as she was a 6 antigen perfect match. Jada & Shafer were successfully transplanted on June 22, 2011 at the Rascal Flatts Surgery Center at Vanderbilt Children's Hospital in Nashville, TN.

(Video updated on 2/19/2016)

 

 

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  Shafer and Mommy (Jada) in the garden at Vanderbilt Children's Hospital five days after surgery.

Shafer has already had five major surgeries, with a future of medical uncertainties ahead. Even though the initial diagnosis of this life-threatening illness gave the Daves very little hope, the Lord has supernaturally touched Shafer to provide hope and healing time and time again. The family asks for your prayers as they travel this challenging, yet miraculous journey. They are incredibly grateful for your outpouring of love and support.

The cost for a kidney transplant often exceeds $500,000, which can be overwhelming for a family. While Shafer's insurance will cover a great deal of this financial burden, the expected out-of-pocket costs are estimated to be $75,000. Even with medical insurance, the months and years following transplant require thousands of dollars of medication and treatment costs. The Children’s Organ Transplant Association (COTA) is a national 501(c)(3) charity dedicated to organizing and guiding communities in raising funds for transplant patients. This money is being raised on behalf of Shafer with the help of many family members, friends, and volunteers who have a passion to help the Daves family. Donations can be made to COTA in honor of Shafer D. 100% of the funds raised will go toward transplant-related expenses and are fully tax-deductible.

WE NEED YOUR HELP!

Here's how you can help:

  • Donate time and talent - contact Kevin at 423-802-0964 or by email at kevin@jadadaves.com, or Kathy Lee (Fundraising Coordinator) at 423-314-7864, to find out when the next volunteer meeting will take place.
  • Donate money - the goal is to raise at least $75,000.
  • Watch Shafer's website (COTAForShaferD.com) for information about fundraising activities—then attend/support the events.
  • Make a secure online donation right here.
  • Send a check, payable to COTA for ShaferD, to:
    Children's Organ Transplant Association
    2501 COTA Drive
    Bloomington, Indiana 47403

All donations are tax-deductible.
Monetary gifts of $75.00 or more will receive a statement of giving from COTA.

How You Can Help

If you could help make a miracle, would you?

The question is as simple as that. If your answer is 'yes', I invite you to join the nearly 100,000 volunteers and contributors who during the past two decades generously donated their time and money to the Children's Organ Transplant Association (COTA). These volunteers and financial supporters are COTA's Miracle Makers -- a group of committed individuals who are helping give children across the country a second chance at life.

COTA is a national non-profit organization that helps children and young adults who need or have had a life-saving transplant by raising funds to pay transplant-related expenses. Transplant families look to COTA for assistance and support, for hope and miracles.

Since 1986, COTA has helped thousands of patients raise millions of dollars for transplant-related expenses. COTA is a 501(c)3 organization; therefore donations to COTA are tax deductible to the fullest extent of the law. COTA is the premier national organization helping families with transplant-needy children and young adults. 100% of all funds raised are used for transplant-related expenses. COTA does not charge a fee or take a percentage of the funds raised.

Make a Donation

Volunteer

The Children's Organ Transplant Association needs your help to make a miracle for Shafer Daves!

Volunteers are needed to help plan and implement fundraising activities.  Individuals and groups who are interested in learning more about volunteer opportunities should contact COTA for Shafer D Public Relations, Kathy Lee at 423.314.7864 or kathyl@prologodepot.net or another key community volunteer.

The COTA for Shafer D key community volunteers are:

Community Coordinator
Oversees and directs all campaign activities.

Public Relations Coordinator
Coordinates all media contacts, press releases and publicity for fundraising activities and events.
Kathy Lee 423.314.7864 kathyl@prologodepot.net

Webmaster
Maintains and updates patient campaign website.
Kevin Daves 423.802.0964 kevin@jadadaves.com

Please join thousands of volunteers across the country and become a COTA Miracle Maker today. Make a donation. Volunteer to help a family. Register to be an organ and tissue donor. Help us make a miracle.

Activities and Fundraising Events

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Activities & Fundraisers

 


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May 29 thru July 4, 2016 - A
Family Raiser will be held for COTA in honor of Shafer Daves, a Chattanooga-area child who is celebrating his 5 year kidney transplant anniversary. The campaign will run for 5 weeks starting May 29 and ending July 4. Six-year-old Shafer had his successful surgery at Vanderbilt Children’s Hospital on June 22, 2011. Funds are being raised to assist with his ongoing transplant-related expenses. This creative campaign urges families to enjoy a low-cost evening together rather than being entertained. In this age of technology and fast-paced lifestyles, few families take time to cherish the moment until a diagnosis becomes a reality and changes “normal” forever. By using the power of social media, this initiative has the potential to reach many across the city, state, and globe. We are calling this unusual fundraiser a “Family Raiser” since this is about so much more than raising funds for Shafer’s cause. This celebration is a reason for families to look inward and plan a memorable time to raise their family up together. Our theme is “Celebrating Life, Family, & Shafer.” Participants will post highlights of what their family did together to Shafer's Facebook page using a specified hashtag and then donate a portion of the money they saved in honor of Shafer for his 501 c-3 medical account. There are three great opportunities to give: online through his website www.COTAforShaferD.com, by mail to the Children’s Organ Transplant Association, or by dropping a donation in one of the boxes at any of the 23 area Little Caesar’s locations (Chattanooga, Northwest Georgia, and Cleveland)…so giving will be convenient and easy for any amount.

“The family and friends of Shafer want to encourage everyone to participate in this fundraising campaign and continue to assist with giving Shafer a second chance at life,” said Kathy Lee, Event Coordinator. “100% of the profits from this Family Raiser will assist with transplant-related expenses.”

For more information about the Family Raiser, or other fundraising and volunteer opportunities, please contact Kathy Lee at (423) 314-7864 or at kathyl@prologodepot.net.


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November 8, 2012
 – Bright Night: An Evening of Inspiration, Music, & Comedy will take place on Thursday, November 8, 2012, from 6:30-9:30p EST. The event will be held at the beautiful, historic Tivoli Theatre in downtown Chattanooga, TN. This will be a fun-filled evening celebrating the miraculous life of Shafer Daves. All proceeds go to support The Children's Organ Transplant Association (COTA) in honor of Shafer, YMCA Boyz Inc., and T.C. Thompson Children's Hospital. Tickets are priced at $50 for adults, and $25 for ages 12 and under.


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August 13, 2011
 – Walk the Runway 4 Shafer with DAN Talent Group on Saturday, August 13, at Noon and 1:30p (CST). The event will be held at the Cool Springs Mall in Franklin, TN, and is part of Nashville Parents annual Back-to-School event.


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Team Shafer is very excited to share a fundraising opportunity with you...it involves SHOPPING!

Stella & Dot is a San Francisco based company carrying fabulous boutique-style jewelry and accessories. Their collections have been featured in In Style and Lucky Magazines. Their pieces are very current, yet very classic in style.

There are no parties and no hassles...ANYONE can simply shop online at www.stelladot.com/ashtongilbert and 20% of the proceeds go to COTA in honor of Shafer. It's just that easy!

To help spread the word, there are two attachments at the bottom of this page. One contains all the information in a single image (Shop for Shafer Information.jpg) - this would be good to send out to your family and friends in an email or on Facebook. The second attachment (Shopping for Shafer.pdf) can be used if you would like to print copies to disperse at various locations - it contains two informational flyers on one sheet of paper.

Help get the word out about this fun "shoportunity" as we continue raising funds for medical expenses. Thanks for all of your help.


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May 31, 2011
 – "Shafer Day at Zaxby's" - Just a reminder that Tuesday, May 31 is our fundraiser at Zaxby’s®. Come to any of the following five Zaxby locations to help raise money for COTA in honor of Shafer just by eating delicious Zaxby’s chicken:

  • 7643 E. Brainerd Rd, Chattanooga, TN (423.894.2445)
  • 4815 Hwy 58, Chattanooga, TN (423.648.5866)
  • 2541 Battlefield Pkwy, Ft. Oglethorpe, GA (706.861.3898)
  • 8884 Old Lee Hwy, Ooltewah, TN (423.648.6584)
  • 9347 Springfield Rd, Soddy-Daisy, TN (423.648.6491)

10% of the net sales will be donated to help with medical expenses.  You can also help spread the word by sending the Zaxby's flyer at the bottom of this page to all of your family and friends. Thanks again for all of your support.


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May 10, 2011
 – Golf Tournament. Tuesday, May 10, at beautiful Windstone Golf Course. The entry fee is $100 per player, or $400 per team, for a 4-man select shot format with a shotgun start at 8:00a. Sponsorship levels are available. Please contact Shawn Roberts at 423.432.5632 or Stacey Roberts at 423.432.2307 for more information. Please click at the bottom of this page to download the registration/sponsor forms.


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May 4, 2011
 – "Supper 4 Shafer" - Wednesday, May 4, from 5:00-8:00p at the Melon Patch Restaurant in Chickamauga, GA. Come enjoy a benefit supper to help raise funds for COTA in honor of Shafer. Good country cooking, southern sweet tea, and a spirit of love and fellowship welcomes all who attend.

 


 

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April 30, 2011
 – "Sing 4 Shafer" - Family karaoke night at Gollywhoppers Sandwich Shoppe from 5:00-9:00p. Invite your friends, family, coworkers, and church members to attend this exciting night of fellowship. 50% of all food sales will go to COTA in honor of Shafer. Karaoke competition and prizes awarded in three age divisions – children to age 12, teens (13-19), and adults (age 20 and up).

 


 

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April 28, 2011
 – Eat Mor Chickin’ 4 Shafer at the Ft. Oglethorpe location of Chick-fil-A from 5:00-8:00p. Fun for the whole family – live music, face painting, & giveaways, with 10% proceeds of receipts going to COTA in honor of Shafer.


 

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April 21, 2011
 – Skate 4 Shafer on Thursday, April 21, from 4:30-9:00p at Hamilton Skate Place. $5 admission includes regular skate rental. All proceeds go to COTA in honor of Shafer for transplant-related expenses. There will also be some special giveaways and grab bags available for $1. Come enjoy a night of family fun while supporting a great cause.


 

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April 16, 2011
Shop 4 Shafer at Learning Express Toys. “Grab Bags 4 Shafer” will also begin. At the North Shore location, from 2:00-5:00p, there will be a petting zoo, pony rides, and pictures made with live bunnies or a lamb. Our very own COTA volunteer, Paula Daves, will be taking the photos (she is a professional photographer and took Shafer’s promotional photo) and all revenue from the pictures will go to COTA in honor of Shafer, along with 20% of the day’s proceeds from both Chattanooga locations of Learning Express Toys (Hamilton Corner, 2115 Gunbarrel Road, and Two North Shore, 313 Manufacturers Blvd.).


COTA "Team Shafer" Meeting


April 14, 2011
 – 6:00-8:00p at Gollywhoppers Sandwich Shoppe. Please bring a friend or two and help us expand Team Shafer.


COTA "Team Shafer" Meeting

March 15, 2011 – Second COTA Volunteer meeting at Gollywhoppers Sandwich Shoppe from 6:00-8:00p.


COTA Volunteer Training
March 1, 2011
- Loose Cannon Art Gallery - Dinner catered by Events With Taste, and training conducted by Amy with the Children's Organ Transplant Association

  

 

 

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WindStone Benefit Golf Tournament Forms.doc178.5 KB
Zaxby's - Shafer Day Flyer 5-31-11.pdf257.29 KB
Shop for Shafer Information.jpg347.31 KB
Shopping for Shafer.pdf2.41 MB
Sponsorship Levels.doc30 KB

Media Coverage

Media Coverage
7/1/2016 Talk Radio 102.3 FM
12/3/2012

When Parents Have Faith, GODwinks

by SQuire Rushnell

Gaither Homecoming Magazine
9/10/2012

Family Learns to Dance in the Rain

by Dr. Nell Mohney

Jada Daves is tall and blond and beautiful. She also is an impressive Christian motivational speaker.

Chattanooga Times Free Press
9/9/2012

Family's Love Supports Chattanooga Two-year-old in Fight Against Kidney Disease

Chattanooga Times Free Press
9/9/2012

Video: Shafer's Family Learns to Live in the Moment

Chattanooga Times Free Press
12/21/2011

Family to Enjoy Christmas with God's Miracle

Baptist & Reflector
10/23/2011

Daves family rallies for Shafer

Chattanooga Times Free Press
10/23/2011

Mom gives life to son twice

Cleveland Daily Banner
8/5/2011 Vanderbilt University Medical Center
8/5/2011

Days of Miracle and Wonder

Shafer Daves needed a kidney, his mom was a match. The story of the life-saving transplant.

House Organ Magazine - Vanderbilt University Medical Center
7/11/2011 Siblings of sick kids need their own care USA Today
7/10/2011

Siblings of sick kids need their own TLC

Medical providers address fears of 'forgotten' children

The Tennessean
7/6/2011 Doctors Stunned at Daves' Progress Polk County News
6/30/2011 Daves Kidney Donation Complete Polk County News
6/22/2011 WKRN-TV2 Nashville
6/22/2011

Operation Lets Mom Give Son Life For Second Time

20-month-old has rare kidney disorder

The Tennessean
6/13/2011 WPIX - New York
6/6/2011 WRCB-TV3 Chattanooga
6/2/2011

Audio Segment featuring Jada Daves

[Click the Play button below to listen]

95.3 FM - Chattanooga
5/30/2011 Mother To Donate Kidney To Young Son--Child Currently Living With No Kidneys WSMV-TV4 Nashville
5/29/2011 Mother's 'fight for my baby' Chattanooga Times Free Press
5/25/2011 Zaxby’s Raising Funds for Local 1-year-old on May 31 Chattanooga Times Free Press
5/25/2011 Mother Approved as Organ Donor for her Child Cleveland Daily Banner
5/6/2011
NASHVILLE, Tenn. – Mother's Day is going to be special a Mother's Day this year for a family who's spent the better part of the last 18 months at Vanderbilt's Children's Hospital in Nashville. Next month, Jada Daves will donate a kidney to her 18-month-old son to save his life. "It's our best chance," she told Nashville's News 2. "We may have 20 years on this kidney, if everything goes, well and then he'll need a second transplant and my oldest children are already saying, 'Mommy, in 15 to 20 years, we'll be old enough to donate.'"

Daves' son, Shafer, was born with Denys-Drash Syndrome, a very rare illness. Since 1967, doctors say there have been only 200 known cases in the world. "It comes with kidney failure [and] Wilms' tumor, which is cancer of the kidney," Daves explained. "We were in a race. Will the kidneys fail first or will he have the presentation of cancer." Shafer's kidneys failed on his first birthday, forcing doctors to remove them, and he has been on dialysis 11 hours a day ever since.

However, on June 6, the blue-eyed-boy will get a new kidney in a rare transplant from his mother. "In my evaluation process, I had to see a social worker and they had to talk to me about the risk involved," Daves said. "It's minimal but they have to talk to you about the 'D' word." Still, Daves says the surgery is worth the risk. "God is in this. This is supernatural," she said. "This is miraculous, so that's one for the medical books. This is the happiest I have ever been on Mother's Day. This will be a very happy Mother's Day because I've been chosen to care for baby Shafer."

Shafer has already undergone six surgeries and the cost of a transplant is in the hundreds of thousands of dollars. A Web site and fund has been set up to help meet the costs involved in the treatment and care.

WKRN-TV2 Nashville
5/6/2011

Fred the Show - Audio Segment featuring Jada Daves and Dr. Deanna Duncan

[Click the Play button below to listen]

102.3 FM - Chattanooga
5/5/2011 WRCB-TV3 Chattanooga
4/21/2011 Kidney Transplant Brings Hope to Family Polk County News
11/15/2010 Celebrity Waiter Event Held Polk County News
10/30/2010

Rascal Flatts Visits Vanderbilt Children's Hospital

Shafer just happened to be in the middle of a 6-week stay at the hospital when Rascal Flatts made a surprise visit during Halloween. Jada and Shafer got to be a part of the festivities, and they were shown three times during the 2-minute video.

 
10/19/2010 Baby With Rare Kidney Disease Defies Odds Chattanooga Times Free Press
9/26/2010 Benefit For Infant Shafer Daves Is Oct. 7 Cleveland Daily Banner

  

Press Release

Ooltewah Baby In Need of Life-Saving Transplant

Ooltewah, TN – With the cost of a transplant often exceeding $500,000, many transplant patients are unable to shoulder the financial burden of such a procedure. The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-needy patients. In Ooltewah, volunteers are raising funds for transplant patients like local baby Shafer Daves.

Born on October 15, 2009, Shafer was diagnosed with Chronic Kidney Disease, and doctors at Monroe Carell, Jr. Children's Hospital at Vanderbilt in Nashville, Tennessee recommended a life-saving kidney transplant. An estimated $75,000 is being raised by Ooltewah volunteers.

Shafer is the son of Kevin and Jada Daves, and the brother of Shayli, Sharayah, Shanel, and Shaw Daves. His grandparents are Jack and Ellen Daves, and Don and Wilby Ledford.

Donations may be made in person at any BB&T Bank branch location using account number 0005108460395 or mailed to the Children’s Organ Transplant Association, 2501 West COTA Drive, Bloomington, Indiana, 47403. Checks or money orders should be made payable to COTA, with “In Honor of Shafer D.” written on the memo line of the check. Secure credit card donations are also accepted online at www.COTAforShaferD.com.

Shafer’s family has asked for assistance from the Children’s Organ Transplant Association. The organization’s priority is to assure that no child is denied a transplant or excluded from a transplant waiting list due to lack of funds. One hundred percent of all funds raised are used for patients’ transplant-related expenses.

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